top of page
whynotdevin_foundation.jpg

THE WHYNOTDEVIN FOUNDATION TO END DIPG

Supporting families battling Diffuse Intrinsic Pontine Glioma

At The WhyNotDevin Foundation to End DIPG, our goal is to help alleviate a part of the enormous financial burden this diagnosis carries for families. Learn more about what we do, how you can help, and how we can all benefit from acts of kindness.

5200625A-C5A7-4921-95F3-08FFE75E38A8.jpe

OUR STORY

This is Devin Suau. At six years old, after falling off his snowboard in January 2017 and seeing a doctor about a possible concussion, was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG).  DIPG is a rare pediatric cancer that is aggressive and unforgiving. The tumor is located in the brain stem, and tragically, because of its location, it is inoperable and has no known cure. Devin's family was told that he had just eight months to two years to live. The news was crippling to Devin's family, but they knew, someone would have to be the first to beat DIPG-

Why Not Devin?

 

Devin was the youngest of four brothers. They loved each other in a way that was inspiring to everyone they met. At such a young age, Devin could light up a room with his contagious laugh and brighten your day with his amazing smile and quick wit.

 

DIPG, because of its rarity, gets very little funding, research, or backing from the medical community. That has to change! Our children deserve a chance to grow up. On October 20, 2017 just shy of nine months following his DIPG diagnosis, and just one week before what would have been his 7th birthday, Devin lost his battle with DIPG. The world lost a superhero, and a family lost their baby.

 

In 2020, in Devin's honor, The WhyNotDevin Foundation to End DIPG was formed as a 501c3. With a mission of aiding and supporting families facing a DIPG diagnosis. The WhyNotDevin Foundation to End DIPG provides resources and financial grants to give every child facing DIPG a fighting chance. Together, we will ensure DIPG doesn't steal another child from their family and their future.

​

Our Story

WAYS WE HELP

The WhyNotDevin Foundation to End DIPG mission is to help families with a child diagnosed with Diffuse Intrinsic Pontine Glioma, both financially and emotionally.  We also take an active roll in spreading awareness for a "rare" disease that gets little to no funding.

65ABCB17-C32A-4C9A-B756-E34D345DB3A8.jpe

FUNDRAISING

Through our fundraising events we hope to maximize efforts to help support those families in the fight of their life with DIPG.

IMG_7212_edited.png

ADVOCACY & AWARENESS

We hope through speaking out and creating awareness for DIPG we can help others in their fight and to someday find a cure.

WND_Jacksabbey_Atlantic.jpg

DIPG FAMILY GRANTS

WhyNotDevin gives grants to families to help offset the many financial burdens that accompany a DIPG diagnosis.

wnd_kindness_cards.png

ACTS OF KINDNESS

We love acts of kindness!!  In Devin's honor and memory do something kind for someone else.

UPCOMING EVENTS

Screenshot 2024-02-20 at 12.57.09 PM.png

DEVIN'S DASH 5K
Sun, Nov. 3 | 11am-3pm
Jack's Abby
100 Clinton St, Framingham

Our annual 5k is back! All ages and experience levels welcome. Register here!

Thank you to everyone that made 
Devin's Day at Jack's Abby a huge success!
Save the Date for 2024
November 3, 2024

Events

PAST EVENTS

The WhyNotDevin Foundation to End DIPG holds events to raise money to help families battling DIPG, to create awareness and to bring communities together.

Screenshot 2024-02-20 at 12.26.00 PM.png

BOSTON MARATHON FUNDRAISER

Thank you to everyone who supported our 2024 Boston Marathon team at Bourbon's!

WhyNotDevin Boston Marathon Team

BOSTON MARATHON TEAM

Life should be a marathon. DIPG kids only get a spring. Help us make a difference one step at a time.

whynotdevin_devinsdash_5k copy.jpg

DEVIN'S DASH 5K

Devin's Dash is a 5k for all ages and abilities.  This year we added a virtual race so supporters don't have to be in the Metrowest area to participate.

DD_community.jpg

”The greatness of a community is most accurately measured by the compassionate actions of its members.”

 

Coretta Scott King

subscribe

CONTACT

The WhyNotDevin Foundation to End DIPG

PO Box 755
Framingham, MA 01701

SUBSCRIBE

Sign up to receive updates and inspiring stories of kindness.

The WhyNotDevin Foundation is a registered 501(c)3 non-profit organization and donations are tax-deductible.Tax ID: 82-4907354

©2021 by The WhyNotDevin Foundation to End DIPG. Site design by Jobin Design, Inc

​

When you conduct a transaction on our website, as part of the process, we collect personal information you give us such as your name, address and email address. Your personal information will be used for the specific reasons stated above only. ​ Our company is hosted on the Wix.com platform. Wix.com provides us with the online platform that allows us to sell our products and services to you. Your data may be stored through Wix.com’s data storage, databases and the general Wix.com applications. They store your data on secure servers behind a firewall. All direct payment gateways offered by Wix.com and used by our company adhere to the standards set by PCI-DSS as managed by the PCI Security Standards Council, which is a joint effort of brands like Visa, MasterCard, American Express and Discover. PCI-DSS requirements help ensure the secure handling of credit card information by our store and its service providers. ​ We reserve the right to modify this privacy policy at any time, so please review it frequently. Changes and clarifications will take effect immediately upon their posting on the website. If we make material changes to this policy, we will notify you here that it has been updated, so that you are aware of what information we collect, how we use it, and under what circumstances, if any, we use and/or disclose it.​

bottom of page